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This is why I avoid nightshades

19 May
Nightshade Chin

Nightshade Chin:

Oh my chin.  AND it does not just LOOK bad.  It HURTS.  When the pain sensation starts, I want to rip my skin off.  It feels like things are crawling under my skin, and nothing makes it feel better.  Soon after I FEEL it, I normally SEE it.  This photo was actually from a “potato incident”.  I had a BITE of a gluten free/vegan cookie sample.  Turns out said cookie recipe included potato starch.

The inflammation I am experiencing today (from probably a tiny amount of red pepper in sausage), has even larger raised areas from the neck upwards on the chin.  It actually looks like I have a very large, round shaped chin at the moment because of the swelling.  I had no intention of sharing these types of photos with anyone other than my dermatologist (whose response was to put me on Accutane and and another daily antibiotic).  But now that I’ve taken that first step into the world of internet “TMI” and the divulging of personal information I would rather keep to myself, I feel that sharing the occasional nightshade chin type photo might prove helpful.  If anything, maybe it will prevent someone from taking the advice of a medical professional insisting that they take medications for something that may very well be caused by a food ingredient such as the deadly nightshade.

Sunday ramblings . . .

19 May

Today my mind is not clear enough to produce a clear and entertaining post.  But my mind is active, and it occurred to me that when that does occur, and thoughts are kicking around – the one thing I SHOULD be doing IS posting.  So here it goes.  The last few weeks have included:

* Me, finally posting personal information on the interwebs via one of my favorite blogs, per a “contest” of sorts, in hopes of making the cut for a gluten free challenge that is being conducted by Iris at TheDailyDietribe.Com.  The concept itself is brilliant. And I am grateful to be in the running.  Even if I don’t get enough votes to be part of the challenge, I will still be following it.

* A trip to New Orleans, which caused me to almost miss the deadline of the contest mentioned previously.  I am so glad that I still saw the post for the challenge at the very last minute.  But I am disappointed that I was unable to write something truly compelling and clear (seeing that I was exhausted and on Benadryl at the time).

Said trip was challenging because I was “glutened” (thinking cross contamination) a few days before we left, and was unable to eat any solid food for 5 days.  Luckily we packed a huge cooler, & I made extra smoothies for the road.  I did well the very last day of our trip.  But then I am quite sure I either mis-ordered my sweet potatoes, or dairy was included mistakenly.  Because I have been having ear & respiratory issues ever since that meal.   We missed a few of the events that we were specifically signed up to attend once we got to New Orleans due to being under the weather.

* And just when I thought I might be getting back on track, & feeling back to normal, some of my old skin issues have returned.  My immediate reaction is to track back everything I have eaten in the past 48 hours.  Which actually due to my recent food indiscretions has been very limited.  So the process was not difficult.  But my old frustrations have returned because well, my skin (specifically on my neck and face) started hurting A LOT while I was working today.  I know the feeling.  It stings some, then starts to just ache, almost like a bruise.  But it’s different, & really impossible to describe.  It just HURTS.  So I’m sitting there working on stuff  I absolutely despise while the rest of the world seems to be off because it is Sunday.  And I can barely concentrate on my work because my chin feels like there is something crawling beneath the top layer of skin.  It starts itching and then hurting more.  I finally look in the mirror.  And yep, the hideous inflammation has returned.  I have huge, nickel sized red raised areas that were popping up as I looked at myself.  That was why it was hurting.  I may take & post photos some day.  I actually have taken photos before, from back when I wanted to show the dermatologist WHY I was complaining so much.  Because, of course, when I would go in for my appointment, my face would always look much better miraculously.

So what do I think the culprit is this time?  I do believe we found a sneaky little nightshade in my breakfast.  My sweet darling partner offered to make me some breakfast sausage today. I remember reading the label at the store, an being excited that it was from a grass fed, hormone free source, with very few ingredients.  I didn’t even ask him to read the label because I had picked it out myself.  I guess I should have requested a second pair of eyes.  Because I just checked it, and one of the ingredients is red pepper.  RED PEPPER.  I can’t imagine that there was a significant amount of this red pepper in the sausage. I certainly did not taste it.  But it was enough to trigger a response in my system.

I don’t know what I am more upset about.  The fact that I only ate a few bites, and had wrapped up the rest with the anticipation of eating some tomorrow when 5:00am came around all too soon to clock into work.  OR the fact that my face looks like I am a teenager in the heat of puberty, and just wiped a slice of pepperoni pizza ON my face.  I just know that the minute I saw my face, and read the ingredient list, profanity followed.  I am SO tired of this.  I did this to myself.  How did I not notice red pepper?  Maybe because it was nestled in between black pepper & celery salt?  Or more likely I was just SO excited about finding sausage that was safe MEAT for me to eat ; being grass fed – that I was not noticing the obvious nightshade lurking in the ingredients.

Doesn’t matter now. It’s too late.  My face hurts like hell.  I look horrible.  And I am not at all excited about now going on our next trip to Portland, where I was hoping to take lots of pictures, with my big, fat, swollen and aching CHIN.  I might as well go eat some Mexican or Italian food at this point.  I LOVE nightshade based foods.  I miss tomatoes and peppers more than dairy and gluten.  I used to have salsa every day of my life at one point.  And I crave the very things that are causing this awful reaction.

So those are my ramblings for this afternoon.  I am going to attempt to have an awesome rest of my day despite the nightshade chin.  I am super excited to go to Portland.  We may even hit some of the unofficial VidaVegan Conference events during our stay.  To be continued……..

 

 

 

Back from another whirlwind travel adventure

9 Jan

Well I have returned home to Kansas City.  The good things about coming home are:

  • Picking up my feathered family members from the avian vet (where they actually have such a great time hanging with new flock members that they seem almost disappointed to see me – with the exception of poor Sunshine, who has separation anxiety, & is at first totally ticked off at me for leaving her there.  But then she slowly warms up, and won’t leave my side for days).
  • Having the comforts of my Vitamix, dehydrator, familiar food sources, and all of the things that make it a little easier to stay on my challenging “diet”, and maintain a healthy routine.
  • More time to devote to this evolving blog, and all of the other networking that I crave online.  I have taken trips where I spend too much time online, posting, sharing, etc.  And then I have taken trips where my dear significant other convinces me to “turn it off” for a while, live in the moment, and document things once we get home.  THAT is what I attempted to do this time.  I took photos, made some detailed notes on Evernote, and then lived in the moment of our adventures.  So NOW that we are home, and I have gotten past the worst part of transitioning back to the grind of the work day, I am super excited to sneak in some time in the coming weeks to blog, share, communicate, and hopefully even get a jump on planning our next adventure out of town.

The not so good feeling things about coming home are:

  • I suffer from serious withdrawal and an overall feeling of being bummed out.  I MISS the places we just went.  I miss the thrill of trying so many new things, having full days of no true obligations – other than the ones I might create for myself – like checking out gluten free businesses, seeing a beautiful sunset over the beach, or having brunch with a friend who I rarely see.
  • I become painfully aware of the things we are missing in this city.  This seems to worsen with each trip because while we absolutely are making strides, and I am so very grateful, other cities are also making strides, and they were already way ahead of us to start with.  So no matter what KC does to make it easier for me to live here, some place else manages to one up it in the biggest way ever.  THAT is something I deal with every time we travel, and I need to focus on how I can learn from what I experience in those other cities, and find a way to incorporate some of it back home.
  • The weather – luckily this time we have had more sun than I am used to January in KC, and I AM LOVING IT.  I felt like the vitamin D and beauty of the sunny days /blue skies we just saw in California were healing me.  I dreaded coming back home to the dead winter scene.  There is still ice on our driveway from before Christmas.

So once I get the rest of our things unpacked, and some laundry done, I will start to document our lovely trip to California right here.  I am hoping as I experience everything a second time through photos and memories, that instead of being sentimental and sad like I sometimes get, I will find inspiration and motivation.  So stay tuned……….

The Jacobson (Kansas City) – Winter Menu updates posted

21 Dec

The Jacobson in Kansas City has been impressing me since the first day I ate there for one of the soft openings.  I was so pleased with that experience, that I believe I went back at least three more times within a week.  I was even fortunate enough to be part of an event where we were able to offer our feedback after dining (which I gladly did).  Each time we have dined there, the server has taken me seriously in regards to my dietary restrictions, and then followed up with the kitchen to ensure what was available right off of the menu, or with modifications.  That was very much appreciated.  But today, I noticed they had posted their winter menu.  And this menu has some great additions (such as the coding – (which is coding I can actually SEE -unlike some places who add a microscopic symbol that I don’t even notice to represent “gluten free”).  THERE IS EVEN A GLUTEN FREE AND VEGAN LASAGNA.

I am excited to head back in, and try some of the winter options.  I am very thankful that this establishment has involved their patrons from the very beginning, and welcomed feedback.  I am also comforted knowing there is yet another new spot in Kansas City where I can dine safely.  Here is the menu.

http://www.thejacobsonkc.com/images/12_12_13dinnermenu.pdf

Article: The gluten made her do it

20 Dec

This piece of reading really strikes a nerve with me since some of my symptoms associated with my own food intolerances most definitely were mental and sensory related.   It always makes me sad when I encounter people who are reaching out to me, maybe venting, but sometimes desperate about either their own issues, or those of their children.  And of course, if I even dare to bring up the slight possibility (I am never rude or assuming about it) that perhaps some of what they are talking about COULD be related to their diet, I am almost always met with a glare, rolling of the eyes, and a change of the subject.

Because, you know, I (being the crazy, imaginary allergy and illness weirdo freak), am determined to convince every other person that they, too , have imaginary food intolerances.  Apparently some people are SO scared of changing their own diets, or listening to someone other than their family doctor, that they have decided that I am about the same as a cult.  I am just making a bunch of crap up, eating a “weird” diet, and then trying to recruit others into my crazy world.  YEAH  – that’s it  – you got me people.  I’m not actually trying to SHARE what I have learned during years of suffering, experimentation, elimination diets, not to mention TONS of wasted money on practitioners.  I don’t want to prevent others from going through what I went through.  No, I must just be doing this because I’m a weirdo.

Yeah.  So my point……is that this article would have come in handy back when I was still in the desperate research phase.  And I would absolutely LOVE to share this article with some people I know who are most likely either going to be murdered by their own children some day, or at best – the poor kids will be put on psychiatric drugs of some sort for mental illnesses that they may not even have.

http://www.anchoragepress.com/news/the-gluten-made-her-do-it-how-going-gluten-free/article_39e2478e-4585-11e2-a80c-0019bb2963f4.html

Gluten & Allergen Free Expos 2013

20 Dec

Is anyone else planning to attend any of the Gluten & Allergen Free Expos this coming year? I am very much interested in attending San Francisco, Chicago, and Des Moines. However, until I can get my job situation better coordinated, I may be limited to Des Moines simply because I always need to be well rested on Saturday nights, ready to work super early Sunday. This would mean I would have to MISS part of the event, unless I can get the time off from work.

I am curious if anyone has attended in past years, and if they have any stories to share. I would love to attend one of the events as a blogger, and be part of the promotion and documentation process, as well as taking in the opportunity to network and learn.

I would love to hear about any or all other events like this that folks have attended, or plan to attend in the future. I have every intention of coordinating work and finances so that I can some day be a part of one of these events. Give me some additional motivation by sharing your own thoughts and experiences.

The first event for 2013 is the Gluten & Allergen Free Expo in San Francisco, CA on February 9-10th.

http://gfafexpo.com/san-francisco/

Low Stomach Acid and Autoimmune Disease (if you think you have acid reflux PLEASE read)

6 Dec

Low Stomach Acid and Autoimmune Disease.

Image

Another dedicated gluten free brewery! Nice!

5 Dec

Another dedicated gluten free brewery! Nice!

This attractive variety of four different ales brewed by Harvester Brewing (out of Oregon), is waiting for me in the fridge of a dear friend in Portland.

Seeking suggestions on Online Dietetics/Nutrition Programs (Bachelor of Science)

28 Apr

In my very limited free time, I have been spending countless hours researching schools.  And if I had the luxury of moving to another city right now, I would most likely already be enrolled and started in a program.  Said program would preferably meet the requirements to take the exam to become a Registered Dietitian.  Once I have done that, I have plans to obtain as much of the integrative education that I can as well.  I already feel pretty well versed on the integrative end of things simply based on my own experiences & intense research.  But I want to learn more, and obtain continuing education with as many different holistic forms of integrative nutrition and psychology as possible.

What I am asking of anyone who might be reading this is for knowledge, feedback, information on ONLINE programs where I could obtain a Bachelor of Science degree focusing on Nutrition/Dietetics completely online, and be able to   ultimately get the R.D.

I have a short list starting with The University of Alabama (Bama By Distance program).  I am interested in their curriculum , and thrilled that they have the online distance learning option.

http://bamabydistance.ua.edu/degrees/bs-in-hes-food-and-nutrition-online/curriculum.html

I found a handful of others.  Nothing was standing out in most cases.  The curriculum comparison was pretty similar in most cases.  The one thing I am questioning is what would be better?  A coordinated program, where you can do your internship hours while you are earning you class credits, OR a regular program where you complete the initial classes, then apply to a didactic program & complete the internship AFTER the fact.

If anyone out there has any words of wisdom, suggestions, first hand experience, I would be so grateful.  It has been years since I really have immersed myself in this world of finding the right program.  Even though I was taking classes in the last ten years – it was simply an extension of my original interdisciplinary studies in Psychology & Liberal Arts.

 

Life on hold . . . for now

28 Apr

I am finally getting around to some blog entries.  The intent has been there every single day.  And I most definitely have had things to share.  But sadly, due to one main thing (WORKING WAY TOO MANY HOURS), and the current state of my health and diet, it has just taken a back seat to sleep and meal preparation.

I will ramble on with some general updates.  Here is somewhat of a list:

* I did NOT attend Nourished in Chicago.  This broke my heart on so many levels.  I don’t think I have ever been so resentful of things like my health state, my job, other people who I feel were selfish & partially to blame for some of it (basically if I want to be a well adjusted adult about my feelings of resentment – I could just say I was feeling very upset due to circumstances).  But at the time, it was coming out as resentment.

As I was working overtime hours, and dealing with getting IV infusions of vitamins and minerals JUST to be able to stay awake & half alert in order to DO my job, I tried SO hard NOT to think about what I was missing – which was the Nourished Conference.

I look forward to living vicariously through those who did attend, by reading their updates, perusing the recaps on everyone’s blogs, and then finding myself another upcoming event that I can attend that will hopefully somewhat make up for missing Nourished.

* I met with a new health provider in Austin, TX. This is actually a pretty big deal.  I went in with no expectations since I have pretty much become totally skeptical of anything and everyone when it comes to health related issues in my life, and in general.  I am pleased to say that THIS doctor was awesome.  We spent over an hour with him, and he really DID “get it”.  I feel that I still have a long way to go before I can do the one thing I think is going to “fix” most everything – which is HEAL MY GUT.  But I have some hope now, and a trusted source/coach in my quest to combat what is going on here, & improve the quality of my life.

* I actually BEFORE meeting with my new doc, finally took the big step that I have been avoiding for an entire year.  I went grain-free.  I am still doing this for just over two months.  Knowing that in order to accomplish what I may need to do could involve me eating this way for at least two years (or possibly forever) is somewhat upsetting to me.  However if I can JUST know at some point that it really IS working, I won’t mind a bit.  I want so badly to feel better.  I want to be able to eat more than a small list of very specific things.  I am not asking for the moon here.  I would like the option of balancing my blood sugar easily, and with plant based forms of protein again.  I would like to be able to enjoy a hemp based  smoothie, or a gluten free/vegan pizza.  That’s really all.  And more than anything I want to some day be able to feel comfortable that what I am putting in my mouth is NOT going to cause some horrible reaction, or damage a part of my body that ultimately will jack up my hormones, and make me literally a crazy person for an undetermined amount of time.  THAT is what I want.  So if it means being grain-free, then I’ll do it.

* I am finally seriously looking into different ways to complete my education.  This may mean working Part Time.  I’ve tried to complete schooling multiple times ; with work always getting in the way.  Technically it was my health initially.  But then as an adult student, it was my work, which in turn caused the decline of my health, and thus kept me from being able to pursue the completion of a degree while working a full time job.

* I am making a vow to blog more often, dedicate time to reaching out to a community of folks that could enlighten me.  I have been battling this food intolerance nonsense for long enough in my own head.  It is time that I join the ranks of others who have opted to form alliances in public in the online community.  At one time I was very hesitant of the idea of sharing ; simply because it is MY problem, and something that it does seem many folks do not want to hear about.  But the more I read every single day, the more people I see who are experiencing the same things that I am.  I feel blessed to have already found so many people online , who have guided me without even knowing it just by posting blog entries, recipes, links, references, etc.

I am looking forward to this transition into a more regular Feud With Food blogging behavior.  Until next time….